The Book of Good Practices
Your go-to tool for patient engagement
Not sure what a good practice is?
Use this tool to reach a common agreement about what is a Best Practice in patient engagement.
Demonstrating the value of patient engagement
The Book caters to the high demand and urgent need to provide examples demonstrating the quality and impact of patient engagement work.
Guidance for newcomers
If you are just starting your patient engagement journey this book can offer you guidance and ideas on how to get it right.
3rd edition good practices
Patient Partnership Program
Consulting a patient and carer group on the delivery of Exoskeleton assisted walking to aid cardiovascular fitness in patients with gait problems due to Multiple Sclerosis
KPI framework to measure progress on the Novartis Commitment to Patients and Caregivers
Clinical Trials – Something for You? Information about participating in Clinical Trials
Global Oncology Patient Insight Panel
Consumer Involvement in Research Program
Roadmap for a future-proof healthcare system
Leukaemia Patient Preference Study
Reducing and mitigating the burden of clinical trials on patients and care partners
R&D Key Performance Indicators and Patient Engagement Planning – a mix of cases
2nd edition good practices
Consulting a patient and carer panel on the design and delivery of a proof of concept drug repurposing trial in Parkinson’s Disease
Patient involvement in preparing clinical research peer-reviewed publications or results summaries: A systematic review
HeadUp Collar: Co-creation of a new cervical orthosis for patients with Motor Neuron Disease/ neck weakness
1st edition good practices
Read the methodology behind
the Book of Good Practices
Co-creating a robust and coherent framework for patient engagement requires collective effort and commitment. If you are curious to find out how the initiatives for the Book of Good Practices were selected, check out our publication in DIA Global.
Be a part of the next edition!
We want to hear from you. Contribute to the “Book of Good Practices” and join the next wave of the selection process.
Who developed this tool
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The “Patient Engagement Management Suite” is brought to you by the PFMD partnership.